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About the Site
The Acromegaly Outreach Program, a support network for people
living with Acromegaly, was founded in 2002 at Cedars-Sinai Medical Center, Los Angeles, California. This program now operates in conjunction with the endocrinology centers at New York University Medical Center and Massachusetts General Hospital. Recognizing that the pituitary disorder, Acromegaly, is relatively unknown to the general public, we have committed ourselves to establishing increased awareness through education and support.
Each medical center offers patients and their families
an array of support services including excellent, specialized
medical treatments, monthly Pituitary
Support Group meetings for emotional well-being,
and education through this web site and through our quarterly Acromegaly
Newsletter.
In
addition, each center will have annual
Educational Symposia for
patients, families and friends where information on all the
current and most innovative treatment options for Acromegaly
will
be
provided.
This website serves to provide information on all aspects of
living with Acromegaly. Resources you will find here include
updates on current news and events for each center, how to
get involved in ongoing clinical studies, learn
more about your medical condition
and feel empowered on how to make the best choices for your medical
care by locating knowledgeable endocrinologists and surgeons.
You can also find solace and relate to others by reading our Patient Stories or by joining our Support
Groups.
LA
Event |
Newsletter |
Stanford
Event |
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Pituitary
Patient Conference 2005
October 2nd, 2005
9:30AM to 3:00PM
Shutters on the
Beach Hotel
Santa Monica, CA
For more info call:
Rosa Lopez
(310) 423-3395
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Acromegaly
Support Newsletter
If you would like to be added to our mailing list and receive complimentary copies
of our quarterly Acromegaly Newsletter, please call:
Boston: (617) 726-3874
Los Angeles: (310) 423-3395
New York: (212) 263-6772
New! Volume 4: Spring 2005 |
Acromegaly Patient Education
Day
September 26th, 2005
9:00AM to 4:00PM
Sheraton
Palo Alto Hotel
Palo Alto, CA
For More Info call:
(650) 725-0701
download flyer
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LA
Event (CME Activity) |
Education |
LA Support
Group |
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| New
Frontiers in Pituitary Disease
Physician Conference
October 28th, 2005
7.30am-4.00pm
Hilton Waterfront Beach Resort
Huntington Beach, CA
For more information call
(310) 423-3395 |
Acromegaly
Education
Acromegaly is a complex and heterogeneous chronic disease resulting
from excess GH production by a tumor usually arising from the
anterior pituitary. The excess GH is responsible for the numerous
physical signs and symptoms as well as biochemical abnormalities
found in patients with Acromegaly. Treatment options include medical,
surgical and radiation.
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L.A.
Pituitary Patient Support Group
August 22, 2005
7:00-8:30pm
“Putting
Theory into Practice at Home”
Facilitated by: Catherine
Jonas, LMFT Cedars-Sinai Medical Center
Harvey Morse Conference
Room 3
RSVP (310) 423-3395
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